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What We Do

  • We connect families with each other, community resources, experienced parent mentors, tools to navigate complex systems in healthcare and insurance and more.

  • By training families, we are empowering them to advocate for the needs of their child and to lead in their local communities and beyond.

  • In serving as leaders alongside families, we are educating healthcare providers, policy makers, teachers and others on the improved outcomes from including, listening to and honoring the voices of these families.

  • Our unique network of staff and volunteers have personal experience navigating the healthcare journey of an individual with a special healthcare need, chronic illness or disability.

  • We serve families and children across all diagnoses and all ages.